
Thursday, April 2, 2009
Home?

Saturday, March 28, 2009
Cast of Characters
Dr. George Kerlakian is the surgeon. He is awfully good. He inspires confidence. He's been very willing to talk to us all and make sure that we were fully informed of the realities and choices that we've faced all the way along. He's got a whole team assembled that all work to support the success of their bariatric surgery practice. In general, the staff in Kerlakian's office have been helpful and responsive. We have been very impressed with them as a group.Kerlakian has a couple of partners who seem to be competent enough although neither of them inspire the same confidence as he does. One of our issues at present is that Dr. Kerlakian left yesterday to travel to Memphis for his daughter's soccer tournament. Although I understand that doctors need to have lives too, I am nonetheless frustrated that Kerlakian's life had to happen just now. We really need him here!
Kerlakian gets followed around by a whole gaggle of medical students and surgical residents on rotation. Most of them are as bland and dull as white bread. Perhaps they haven't arrived at the point in their medical educations where they are taught to exhibit personality -- where they learn to relate to human beings as part of their practice. Blech! The one oddball fellow in the group is a young medical student who we've come to call 5AM Nick. He is the first one on the floor every morning, and comes bounding into the room promptly at 5AM with a thousand questions. In the beginning, we found Nick to be awkward and moderately annoying, but he is so gosh darned earnest that it is hard to not like him.
We had excellent nursing care during the first part of our stay here at Good Samaritan Hospital. The nurses and Personal Care Assistants that attended to Master and T after their surgeries were very good. Megan and Meghan, Tracey, and even Jodie (who sometimes seemed very brusque) were all very good, each in their own way. The PCA team was helpful and friendly and supportive. Carol, a great, tall, warrior woman, was cheerful and efficient, and she cheered for every accomplishment. We all got very fond of her. Sarah and Amanda, likewise made so many things about our early days here much easier.
During those first days we met and became very fond of the Nurse Manager, Sherri Joyce. She was quite intrigued by our family and by the "couple" surgical adventure that we were embarking on. We spent a lot of time talking with Sherri, and she was clearly very proud of the team of nurses that she had working under her supervision.
When Master and I came back here in the very early hours of Friday morning, we first came into the Emergency Room. There is major construction happening around the outside of the hospital, and the entrance to the emergency room is far from obvious. I drove us around and around, until finally, in desperation, I pulled into the space that was marked for ambulances only, and ran in to see if I could get someone to help us. A very kind, gentle voiced nurse, actually came outside and walked around the side of the building, guiding me to the place where I needed to go. Once inside the place, we found that the gentle voiced fellow would be Master's emergency room nurse. His name was Michael. Michael's kindness and compassion was simply remarkable to watch. He made what was a very stressful time just a little more bearable.
Then, we came back up to the same surgical floor where we were earlier in the week. Except that, these last few days the level of care and attentiveness has been much less even. The nurse who was on duty when we first came up seemed alright at first, but when the first IV faltered, she told us that she couldn't start an IV -- didn't know how. Really? A nurse who cannot start an IV? As it turns out, it was a sign of things to come. We had an older nurse during the night last night, when things were so terribly difficult. I believe that she was well meaning, but she seemed very old fashioned and unwilling to act as our mediary with the doctors. She just kept feeding us the same useless pablum until we finally got frustrated and made it clear that something needed to be done or there was going to be real trouble. Today, throughout the day, we've dealt with "nurse" Angela. Angela got herself into a snit very early on, as Master opted out of taking a number of His usual medications. He is choosing to wait to resume many of those during this time when His newly remodeled stomach is being so sensitive. Angela clearly disapproved of His choices, and made her feelings very clear. For the rest of the day, she was largely absent, only coming in when she couldn't avoid it, and then providing only the most perfunctory level of care. Randi, the PCA was just frankly not interested, and seemed to spend most of her shift sitting and chatting at the nurses station. Tonight, finally, we seem to have a pretty good team again. Tracey is back. She's wonderful! The PCA is a delightful young woman named Kimmie, and just having her around seems to lighten Master's mood.
I am hoping that tonight will be better than last night. Soon, within the next few days, we'll be heading home. The days here in the hospital will blur into memory. I wanted to have a record of the cast in this part of the saga.
swan
Now I am Angry
Master had a serious coughing fit that lasted well over an hour starting at about 1:15 AM, and in spite of our repeated requests for something to help manage the ferocity of the cough, or at the very least, some way to reduce the pain He experienced because of it, we were met with indifference, hostility, and a general a
ttitude of condescension. When I finally got stomping angry over it all, the night nurse gave in and called the resident to come look at the situation. He insisted that they wanted Master to keep coughing; that coughing is an important part of getting well; and he was simply unwilling to give Him anything to quiet the spasms. When I got my back up and told the arrogant jerk that this was NOT simply coughing; it was violent and wrenching and was leaving Him gasping unable to catch His breath. The best that the "medical professional" could offer -- IV morphine for the pain. There was just one problem with that BRILLIANT idea... Master's IV port had stopped functioning at around midnight, and no one in this supposedly "excellent" hospital was able to get a new IV started, even though four so-called "experts" tried. Some of those efforts were just brutal. They finally gave up on the whole business, and the coughing calmed on its own. At about 3:30 this morning, He and I finally fell into an exhausted sleep. We were not awakened by the usual parade of residents until 6 AM.
They did finally find someone who could efficiently and effectively re-establish His IV port this morning, and so as of now, He is once again being given IV fluids and antibiotics. He's also been given the go-ahead to restart clear liquids, so He's been given some apple juice and some sugar-free jell-o and a little warm tea. He did regurgitate a bit of that, but so far most of it seems to be staying down.
This morning, He has experienced repeated bouts of diarrhea, and there is some thought that perhaps He has now a C-diff infection. We are waiting to be able to get a stool sample that can be cultured. T is at home, and doing well, but understandably worried and wanting to be able to see Him. I may go home and get her later in the day and bring her down for a visit, but I am reluctant to do that until we know what we have going on here. She is doing so well. We do not need to expose her to some nasty bug and send her into a tail spin.
Mostly I am angry -- beyond angry, I am furious. The very excellent care that both Master and T received in the days immediately following the surgery has devolved to a style of medical practice that is seeming resentful, parsimonious, and just at the verge of neglectful. I am very aware, this morning that, had I decided not to spend the night here last night, He'd have been all alone in the face of the coughing and the horrible IV debacle; and no one would have cared. I find that just outrageous.
I am exhausted, but I am more than determined than ever that, one way or another, we will get the care that is needed here, and He will get better, and I WILL take Him home.
swan
Monday, March 23, 2009
All is Well
Both are sipping water and tolerating that fairly well. They've had times of queasiness, but no serious nausea which is a very good sign. T has already been up and walked the length of the hospital hallway. Master is due to sit up for the first time in about 15 minutes.
We are all fine. I haven't been able to get connected to the hospital network all day long. Just finally managed to get a connection, so I apologize for keeping everyone waiting to hear. Hopefully, I'll be able to get back tomorrow and update you all.
swan